Research Centers of Excellence
Dr. Gabriel G. Malouf MD, PhD provides a good overview of rare kidney cancers at the molecular level for patients and physicians.
Presented at the 2016 GUASCO conference in San Francisco
Due to their small population, few resources and fewer clinical trials are devoted exclusively to patients with rare kidney cancer (also call "non clear cell renal cell carcinoma" or nccRcc).
Bill Paseman, CTO of rarekidneycancer.org, recently spoke at the National Cancer Institute (NCI) symposium “Cancer Moonshot Symposium on patient/participant-controlled data sharing”, held on September 26-27, 2019 in Bethesda, MD.
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