Abstract
Hi, I’m Bill Paseman. I have p1RCC and am with rarekidneycancer.org.
Blog
Catalyzing Research Using Patient Centered Games
Introduction
Healing Research
Invited talk at Vanessa Hackathon (Thanks Pete Kane).
Preparing for recurrence
Recently, I was asked "I was wondering what process would you follow that could build on what we know and dont know from <our hackathon> and your hackathons? We, ... are facing the issues of preparing for recurrence..."
Here was my response
Problem
Desiderata for a Federated RCC Query System
Kidneycancer.org and SecureAIlabs.com are creating a federated database query system and have asked for input on their effort.
Hackathons: Catalyzing Research using Ensembles of Classifiers
Abstract
Open Letter to Representative Anna Eschoo
Dear Representative Eschoo,
TSPG and TLFRCC (thyroid-like follicular renal cell carcinoma)
Eva Comperat's session at the 2021 GUASCO described several new Kidney cancer subtypes including a thyroid-like variant dubbed TLFRCC. Ko describes this variant in her paper "Whole-genome and transcriptome profiling of a metastatic thyroid-like follicular renal cell carcinoma".
TSPG and the 2018 p1RCC DNA Hackathon Results
Research Hackathons - a path forward when Clinical "Standard of Care" and Clinical trials run out
2020 Yearend p1RCC Hackathon Update
Assuming money is no object, your medical care is a function of your clinician's medical knowledge. If you have a common, well understood condition, your clinician will treat you using a "Standard of Care", a written procedure that tells them exactly what to do and how to repeat it with great success. Effective "Standards of Care" are usually straightforward. For example, few people die of
